Yesterday was an eventful day for me here at chronically ill central. I had a very productive day cleaning out some stuff and taking photo's of our home. It was actually fun and it made me realize how well we have maintained our home over the past twenty-two years. It almost looks brand new from a distance, just keep at a distance. There are a few minor repairs but not many as we have kept up over the years on most of the little stuff that are mostly nuisances over the years. You might say Rich and I are both pretty fussy about keeping things nice. When we buy something, anything, we keep it in the best condition possible so it lasts a long time. To us trashing something for the newer model is not in our understanding. Rich works hard and I watch him work hard so when we spend money on something we both remember how we are able to purchase it, hard work! Mostly his but as he say, "Our hard work." It is funny how he always tells me I work just as hard as he does even though we both know that is so untrue. Funny when you really think about it. I am usually the one laughing out loud every time he says it while he tells me don't laugh it is true. Ha, he cracks me up.
I think the reason I kept so busy yesterday is because I had a sleep test done last night. I was not looking forward to it at all as I have had one in the past. Things have changed over the years and fortunately I was able to do the test at home in my own bed. We had to picked up the little machine and before bed Rich hooked me up. It was simple, except for the stress of it all. You see, when you have had so many tests done over the years the last thing you want to do is have another one. I fight to the bitter end trying to avoid any "new" tests except for my regular quarterly blood tests, those are a breeze and I don't get too worked up about those. Plus they are for Dr Key and she gets me to a tee so that makes it all the easier. The reason for this sleep test is to check for apnea and hopefully find out why I have such a hard time falling asleep. Anxiety? I don't think so but you know how doctors categorize everyone in the same group. You can't fall asleep? You have anxiety. Ummm, I think if I had anxiety it would be because of doctors. Because of illness. Because of how worked up I get just thinking about an upcoming appointment or living with this every minute of everyday. I never use to be like this until regularly scheduled doctors appointments and until drugs became a way of life for me. I think all the side effects do not help with anything. This is one of the reasons I am cutting down on drugs I need to see if the sleep issue resolves itself. By the way yesterday I also started the next prednisone/medro decrease down to three mg. Wahoo! Hoping this doesn't knock me down as the past few days I have felt more adjusted to the four mg decrease. If it does it will be worth it in the end! I know. I AM keeping my eye on the prize.
Yesterday I also had yoga class so I was very happy for that. It helps to go to a class and have a professional helping you. Doing it at home is helpful too but at home the phone, the texts, the dog, the cat, and all the other distractions take away from quiet yoga time. I must say even with the yoga it still took me over two hours to fall asleep. Frustrating to say the least. I must say I was looking mighty sexy with all those wires and belts coming from all over. Haha. I am sure that didn't help the falling asleep part either. Plus the idea of someone listening to the recorder of me sleeping CREEPS me out. I know I am pretty open on my blog but I am a private person when it comes to other stuff. So someone listening in on me doing whatever it is I do when I sleep is CREEPY! Oh well, it is over and I will drop the mystery box back off today and hopefully have some sort of answer. One good thing that could come from all of this is if you do not have apnea there are now behavior specialist who specialize in sleep and teach you how to sleep. Yoga? Hummm, wondering about how much these two will cross paths. When I went to PT for my neck the therapist told me if I keep doing yoga it will be just like going to PT. He was right so I went four times and said, "Why am I coming here if I am doing yoga? See ya!" I am doing better with neck pain. Yes, it is still there and probably always will be but the pain has decreased a lot. This is why I continue to do yoga. I wish I could afford to go everyday to a class but reality doesn't work like that so I do the best I can with my dog and cat crawling all over me and smothering me with kisses. That is good therapy too let me tell you.
The story continues. At this point it seems to be a never ending battle. I fight on. I will not give up. Yes, I am sick of it all. Sick to death, sick to the core, but it is what it is. Brighter days are always ahead and I will continue to push on to the day where the sun shines continually and I am cured!
God Bless!
Dianne
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