Sunday, August 21, 2011

June is Myasthenia Gravis Awareness Month

It is Myasthenia Gravis Awareness Month!
...waking in the morning and having to lay there for up to a 1/2 hour to get out of bed.
...wanting to clean your house and once you start you are forced to sit down because your muscles can't handle being over worked. Some days nothing gets done except the essentials.
...taking a shower and having a hard time washing your hair, then having to rest because a shower is exhausting.
...waking in the middle of the night choking and/or having shortness of breath when doing anything physical.
...not being able to have a job when you want one and then listening to others complain about theirs.
...having a passion for reading but once you start the words become one big black blurry blob or you see 2 of everything. Other times your eye droops down so far it causes more vision issues.
...feeling sick and fatigued all the time and you are unable to even describe it to help people understand. Most don't.
...people saying to you, 'all you need it is to get out more.' which leads to the frustration and more loneliness that no one understands.
...not being able to enjoy summer because the heat exasperates all your symptoms and just plain makes you sick.
...watching the people who really do love and care about you worry constantly and sometime obsessively.
...never making plans because you usually have to cancel anyways.
...I don't have to imagine because I live it. This is Myasthenia Gravis.
....One more thing...Imaging how blessed you feel because you really are one of the luckiest people in the world because illness has taught you what really matters in life. I am and I know!!

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